The Children

Below are short stories of some of the children that have been apart of our journey thanks in part to the generous support of our donors. Due to family privacy concerns, some stories are more detailed than others, including the addition of their child’s picture. We respect all decisions the family makes and encourage them to pursue the best interest of their children.

Crysta

Crysta is a 16 year old special needs child. Crysta was in the intensive care unit (ICU) for months. She has multiple needs and required both a ventilator and a

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Bryan

Bryan is an energetic 14 year old boy who has complex health issues with his primary diagnosis being Lennox-Gastaut syndrome which is a very severe form of epilepsy. He is

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Niandria

Niandria is a 5 month-old girl with complex congenital heart disease. Her family traveled to Dallas for her open heart surgery, which was rescheduled on multiple occasions and delayed after

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Arantxa

Arantxa is a two month old little girl who has been diagnosed with a congenital heart defect. She underwent major heart surgery within a few weeks of life and had

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Destiny

Destiny is a post kidney transplant patient who received a kidney from her father over the summer of 2015. She had been able to do well post transplant, until recently, as

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Jasiah

Jasiah is a 6 year old boy who received a kidney transplant from his mother in August 2015.   Jasiah lives with his mother, two brothers and one sister.  Jasiah’s mom

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Neyda

Neyda was diagnosed with neuromuscular disorder. Her family took the diagnosis pretty hard not only from the strain on their daughter’s health but also from the strain on the family’s

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Jonah

Jonah has a history of Batten’s disease (an extremely rare and fatal autosomal recessive neurodegenerative disorder), Spastic Quadriplegia, Intractable Epilepsy, Blindness, Scoliosis, and Osteopenia. His mother has been at his bedside throughout the hospitalization. 

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Trevor

Trevor and his family were unable to pay for their water bill due to co-pays for his prescriptions being a necessary expense. Their water was shut off so we made

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Zena

After losing their daughter in 2014 to Late Infantile Batten Disease at the tender age of 8, and then losing their son midterm just 10 months later, Zena’s parents really

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Abralyn

Abralyn was hospitalized at 2 weeks old after her primary physician had heard a slight heart murmur. While thinking this was a typical VSD, the thought was that the murmur

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Levi

Levi is an eight year old patient who has Cystic Fibrosis and a neuromuscular disease that he has lived with most of his life. Shortly after his birth and the

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Maria

Maria is a medically complex two year old little girl. After her sister recently was discharged from a lengthy hospital stay, Maria was soon admitted for a similar complication of

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Brian

Brian has a history of end-stage liver disease and underwent a liver transplant when he was only one year old. He has required a great deal of medical intervention since

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Toby

In September 2007, Toby was diagnosed with Stage 4 hepatoblastoma at 11 months old and was only given a 10% chance of survival. Over the next year he underwent 6

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The Extra Step Foundation is a 501(c)3 tax-exempt non-profit organization. Through our partnership with Children’s Health in Dallas, Texas, 100% of donations we receive go directly towards benefiting patients and their families at the hospital. Thank you for the support you bring to these deserving families!