Jasiah
Jasiah is a 6 year old boy who received a kidney transplant from his mother in August 2015. Jasiah lives with his mother, two brothers and one sister. Jasiah’s mom has been a stay at home mother so that she can care for Jasiah prior to transplant and post transplant. Due to the limited income […]
Neyda
Neyda was diagnosed with neuromuscular disorder. Her family took the diagnosis pretty hard not only from the strain on their daughter’s health but also from the strain on the family’s savings. The Extra Step was able to assist the family with various expenses with numerous medical appointments.
Jonah
Jonah has a history of Batten’s disease (an extremely rare and fatal autosomal recessive neurodegenerative disorder), Spastic Quadriplegia, Intractable Epilepsy, Blindness, Scoliosis, and Osteopenia. His mother has been at his bedside throughout the hospitalization. His father is the breadwinner of the family but Children’s requested his presence at the hospital. Jonah’s father desperately wants to be at the hospital with his son, […]
Trevor
Trevor and his family were unable to pay for their water bill due to co-pays for his prescriptions being a necessary expense. Their water was shut off so we made “The Extra Step” to turn their water back on. Trevor is a liver transplant patient who needs many medications daily. It is very important for […]
Zena
After losing their daughter in 2014 to Late Infantile Batten Disease at the tender age of 8, and then losing their son midterm just 10 months later, Zena’s parents really didn’t think there was much more that could be thrown at them. They were wrong. Shortly after Zena’s birth, she was immediately transferred to Children’s […]
Abralyn
Abralyn was hospitalized at 2 weeks old after her primary physician had heard a slight heart murmur. While thinking this was a typical VSD, the thought was that the murmur would close on its own. 4 weeks later, the doctors found the murmur to be more serious than previously thought and that Abralyn’s left side […]
Levi
Levi is an eight year old patient who has Cystic Fibrosis and a neuromuscular disease that he has lived with most of his life. Shortly after his birth and the medical complications, his mom left, leaving his dad, who is disabled by severe epilepsy and Levi’s grandma to take care of him. Levi requires the […]
Maria
Maria is a medically complex two year old little girl. After her sister recently was discharged from a lengthy hospital stay, Maria was soon admitted for a similar complication of the heart. Fortunately, the two little girls have been discharged from the hospital and are living active young lives. However, due to both girls having […]
Brian
Brian has a history of end-stage liver disease and underwent a liver transplant when he was only one year old. He has required a great deal of medical intervention since that time requiring regular follow up appointments, lab draws and hospital admissions. Brian’s family has experience financial strain as a result of their out-of-pocket medical […]
Toby
In September 2007, Toby was diagnosed with Stage 4 hepatoblastoma at 11 months old and was only given a 10% chance of survival. Over the next year he underwent 6 rounds of chemotherapy, two lung surgeries and two liver transplants. On August 5, 2008, Toby became very sick and was admitted to Children’s, and by […]