Jonah has a history of Batten’s disease (an extremely rare and fatal autosomal recessive neurodegenerative disorder), Spastic Quadriplegia, Intractable Epilepsy, Blindness, Scoliosis, and Osteopenia. His mother has been at his bedside throughout the hospitalization. His father is the breadwinner of the family but Children’s requested his presence at the hospital. Jonah’s father desperately wants to be at the hospital with his son, but knows that he has bills to pay. The Extra Step was able to cover the families expenses while they go through unimaginable circumstances.
